As we were reflecting on what he has been through during that time, we took time to verbally tally up all the good things he's experiencing right now & rejoice in it; Things we took for granted in his pre-transplant life. Things like:
- No skin rashes
- The ability to walk unassisted & without pain
- No more tubes hanging out of his chest, thus can shower again without caution
- Beginning to actually look forward to eating meals
- Eating without mouth or stomach pain
- Getting out among people again without as much fear of catching something
This journey continues & will for a long time yet. Ray has several tests this week as part of his ongoing followups. Basically it consists of various tests to see how his internal body is holding up to the intense drama its been put through & hope the damage control attempts worked! Monday he had a DEXA scan of his bones & Pulmonary tests. Tomorrow he goes in for another Bone Marrow Biopsy. I suppose there will be many more tests & follow-ups to ensure that any issues he may have are nipped in the bud before they can cause serious problems. His white blood count which gauges his immunity level is even better than mine now. Yeah!
Right now the doctor is slowly weaning him off of the high steroids he's been on to fight the case of GVHD he had. Unfortunately those steroids caused a few side effects that we are addressing now. The biggest concern is his kidney function levels. In an attempt to correct that, they've been giving him daily IV's of fluids & he's been drinking enough to drown an elephant in order to flush his kidneys. He's a trooper though cause I don't have to nag him about drinking as much as he can - he makes sure he's always got a drink in his hand. And that's NON-alcoholic.
This journey continues & we travel it hand in hand with each other.
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